Escola Anna Nery Revista de Enfermagem
https://www.eanjournal.org/article/doi/10.1590/2177-9465-EAN-2023-0172en
Escola Anna Nery Revista de Enfermagem
Pesquisa

Implementation of intensive care diary: perception of the family and the nursing team

Implementación del diario en cuidados intensivos: percepción de la familia y del equipo de enfermería

Implementação de diário em terapia intensiva: percepção de familiares e da equipe de enfermagem

Ketlen Monteiro Mussart; Patrícia Treviso; Anelise Kirst da Silva; Sílvia Fátima Ferraboli; Thieli Lemos de Souza; Sofia Louise Santin Barilli

Downloads: 0
Views: 204

Abstract

Objective: to identify the perception of family members and the nursing team regarding the implementation of an Intensive Care Unit diary into the routine care of critically ill patients.

Method: descriptive and qualitative study, carried out in an adult Intensive Care Unit (ICU), between July and October/2022. A diary was implemented, with records from family members and the nursing team. The family members' perception was identified through interviews, and the team's perception was identified through a conversation circle. Minayo thematic analysis was used. The study was approved by the Research Ethics Committee.

Results: nine family members participated; the following categories emerged: Benefits of using the ICU diary and Factors that may influence the use of the ICU diary. From the conversation circle, with five professionals from the nursing team, the categories were highlighted: Improved connection with patient and family; The diary as a source of information and ethical aspects related to records.

Final considerations and implications for practice: family members and nursing professionals considered the instrument beneficial, both for family members and patients. To support its implementation, well-established flows on use and family outreach are essential to support the process and obtain buy-in from the parties involved.

Keywords

Critical Care; Diary; Nursing, Team; Family; Intensive Care Units

Resumen

Objetivo: identificar la percepción de los familiares y del equipo de enfermería sobre la implementación del diario de Unidad de Cuidados Intensivos en el cuidado rutinario del paciente crítico.

Método: estudio descriptivo y cualitativo, realizado en una Unidad de Cuidados Intensivos (UCI) de adultos, entre julio y octubre de 2022. Se implementó un diario, con registros de los familiares y del equipo de enfermería. La percepción de los familiares fue identificada a través de entrevistas y la percepción del equipo a través de una rueda de conversación. Se utilizó el análisis temático de Minayo. El estudio fue aprobado por el Comité de Ética en Investigación.

Resultados: participaron nueve familiares; surgieron las siguientes categorías: Beneficios del uso del diario de UCI y Factores que pueden influir en el uso del diario de UCI. De la rueda de conversación, con cinco profesionales del equipo de enfermería, se destacaron las categorías: Mejora de la conexión con el paciente y la familia; El diario como fuente de información y Aspectos éticos relacionados con los registros.

Consideraciones finales e implicaciones para la práctica: los familiares y profesionales de enfermería consideraron beneficioso el instrumento, tanto para los familiares como para los pacientes. Para su implementación, son esenciales flujos bien establecidos sobre el uso y el alcance familiar para respaldar el proceso y obtener la aceptación de las partes involucradas.

Palabras clave

Cuidados Críticos; Diario; Equipo de Enfermería; Familia; Unidades de Cuidado Intensivo

Resumo

Objetivo: identificar a percepção de familiares e da equipe de enfermagem sobre a implementação de um diário de Unidade de Terapia Intensiva à rotina de cuidados do paciente crítico.

Método: estudo descritivo, qualitativo, realizado em uma Unidade de Terapia Intensiva (UTI) adulto, entre julho e outubro de 2022. Implementou-se um diário, com registros de familiares e da equipe de enfermagem. A percepção dos familiares foi identificada através de entrevistas, e a da equipe, por meio de roda de conversa. Utilizou-se análise temática de Minayo. O estudo foi aprovado por Comitê de Ética em Pesquisa.

Resultados: participaram nove familiares; emergiram as seguintes categorias: Benefícios da utilização do diário de UTI e Fatores que podem influenciar no uso do diário de UTI”. A partir da roda de conversa, com cinco profissionais de enfermagem, evidenciaram-se as categorias: Melhora da conexão com paciente e família; O diário como fonte de informações e Aspectos éticos relacionados aos registros.

Considerações finais e implicações para a prática: os familiares e os profissionais de enfermagem consideraram o instrumento benéfico, tanto para familiares quanto para pacientes. Para sua implementação, fluxos bem estabelecidos sobre o uso e a aproximação da família são essenciais para subsidiar o processo e obter a adesão das partes envolvidas.

Palavras-chave

Cuidados Críticos; Diário; Equipe de Enfermagem; Família; Unidades de Terapia Intensiva

Referências

1 Zhang Z, Spieth PM, Chiumello D, Goyal H, Torres A, Laffey JG et al. Declining mortality in patients with acute respiratory distress syndrome: an analysis of the acute respiratory distress syndrome network trials. Crit Care Med. 2019;47(3):315-23. http://doi.org/10.1097/CCM.0000000000003499. PMid:30779718.

2 Hofhuis JGM, Schrijvers AJP, Schermer T, Spronk PE. Health-related quality of life in ICU survivors-10 years later. Sci Rep. 2021;11(1):15189. http://doi.org/10.1038/s41598-021-94637-z. PMid:34312447.

3 Geense WW, de Graaf M, Vermeulen H, van der Hoeven J, Zegers M, van den Boogaard M. Reduced quality of life in ICU survivors - the story behind the numbers: a mixed methods study. J Crit Care. 2021;65:36-41. http://doi.org/10.1016/j.jcrc.2021.05.008. PMid:34082253.

4 Vrettou CS, Mantziou V, Vassiliou AG, Orfanos SE, Kotanidou A, Dimopoulou I. Post-intensive care syndrome in survivors from critical illness including COVID-19 patients: a narrative review. Life. 2022;12(1):107. http://doi.org/10.3390/life12010107. PMid:35054500.

5 Yuan C, Timmins F, Thompson DR. Post-intensive care syndrome: a concept analysis. Int J Nurs Stud. 2021;114:103814. http://doi.org/10.1016/j.ijnurstu.2020.103814. PMid:33220570.

6 Serrano P, Kheir YNP, Wang S, Khan S, Scheunemann L, Khan B. Aging and postintensive care syndrome-family: a critical need for geriatric psychiatry. Am J Geriatr Psychiatry. 2019;27(4):446-54. http://doi.org/10.1016/j.jagp.2018.12.002. PMid:30595492.

7 Johnson CC, Suchyta MR, Darowski ES, Collar EM, Kiehl AL, Van J et al. Psychological sequelae in family caregivers of critically III Intensive Care Unit patients: a systematic review. Ann Am Thorac Soc. 2019;16(7):894-909. http://doi.org/10.1513/AnnalsATS.201808-540SR. PMid:30950647.

8 Tripathy S, Acharya SP, Sahoo AK, Mitra JK, Goel K, Ahmad SR et al. Intensive care unit (ICU) diaries and the experiences of patients’ families: a grounded theory approach in a lower middle-income country (LMIC). J Patient Rep Outcomes. 2020;4(1):63. http://doi.org/10.1186/s41687-020-00229-2. PMid:32705412.

9 Barreto BB, Luz M, Rios MNO, Lopes AA, Gusmão-Flores D. The impact of intensive care unit diaries on patients’ and relatives’ outcomes: a systematic review and meta-analysis. Crit Care. 2019;23(1):411. http://doi.org/10.1186/s13054-019-2678-0. PMid:31842929.

10 McIlroy PA, King RS, Garrouste-Orgeas M, Tabah A, Ramanan M. The effect of ICU diaries on psychological outcomes and quality of life of survivors of critical illness and their relatives: a systematic review and meta-analysis. Crit Care Med. 2019;47(2):273-9. http://doi.org/10.1097/CCM.0000000000003547. PMid:30431494.

11 Mickelson RS, Piras SE, Brown L, Carlile C, Drumright KS, Boehm L. The use and usefulness of ICU diaries to support family members of critically ill patients. J Crit Care. 2021;61:168-76. http://doi.org/10.1016/j.jcrc.2020.10.003. PMid:33171334.

12 Barreto BB, Luz M, Amaral Lopes SAV, Rosa RG, Gusmão-Flores D. Exploring patients’ perceptions on ICU diaries: a systematic review and qualitative data synthesis. Crit Care Med. 2021;49(7):e707-18. http://doi.org/10.1097/CCM.0000000000005019. PMid:33861546.

13 Dryden-Palmer KD. PICU diaries: a simple and promising family-centered intervention. Pediatr Crit Care Med. 2019;20(2):208-9. http://doi.org/10.1097/PCC.0000000000001838. PMid:30720661.

14 Barreto BB, Luz M, Amaral Lopes SAV, Rosa RG, Gusmão-Flores D. Exploring family members’ and health care professionals’ perceptions on ICU diaries: a systematic review and qualitative data synthesis. Intensive Care Med. 2021;47(7):737-49. http://doi.org/10.1007/s00134-021-06443-w. PMid:34117901.

15 Souza VR, Marziale MH, Silva GT, Nascimento PL. Tradução e validação para a língua portuguesa e avaliação do guia COREQ. Acta Paul Enferm. 2021;34:eAPE02631. http://doi.org/10.37689/acta-ape/2021AO02631.

16 Processo-consulta CFM nº 21/2019 – Parecer CFM nº 24/2019 (BR). Definições de unidade de terapia intensiva e unidade de cuidados intermediários Diário Oficial da União [periódico na internet], Brasília (DF), 2019 [citado 2023 out 16]. Disponível em: https://sistemas.cfm.org.br/normas/arquivos/pareceres/BR/2019/24_2019.pdf

17 Minayo MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. São Paulo: Hucitec; 2014.

18 Resolução nº 466, de 12 de dezembro de 2012 (BR). Trata de pesquisas em seres humanos e atualiza a resolução 196. Diário Oficial da União [periódico na internet], Brasília (DF), 2012 [citado 2023 out 15]. Disponível em: https://conselho.saude.gov.br/resolucoes/2012/Reso466.pdf

19 Johansson M, Wåhlin I, Magnusson L, Runeson I, Hanson E. Family members’ experiences with intensive care unit diaries when the patient does not survive. Scand J Caring Sci. 2018;32(1):233-40. http://doi.org/10.1111/scs.12454. PMid:28524380.

20 Muñoz-Rey MP, Delgado-Hito P, Juvé-Udina ME, Cuzco-Cabellos C, Huertas-Zurriaga A, Romero-García M. The diary in the intensive care unit: concept analysis. Enferm Intensiva. 2024;35(3):178-87. http://doi.org/10.1016/j.enfie.2023.08.010. PMid:38228417.

21 Pattison N, O’Gara G, Lucas C, Gull K, Thomas K, Dolan S. Filling the gaps: a mixed-methods study exploring the use of patient diaries in the critical care unit. Intensive Crit Care Nurs. 2019;51:27-34. http://doi.org/10.1016/j.iccn.2018.10.005. PMid:30573347.

22 Haruna J, Tatsumi H, Kazuma S, Kuroda H, Goto Y, Aisaka W et al. Using an ICU diary to communicate with family members of COVID-19 patients in ICU: a case report. J Patient Exp. 2021;8:23743735211034094. http://doi.org/10.1177/23743735211034094. PMid:34377772.

23 Bazzano G, Buccoliero F, Villa M, Pegoraro F, Iannuzzi L, Rona R et al. The role of intensive care unit diaries in the grieving process: a monocentric qualitative study. Nurs Crit Care. 2023;28. http://doi.org/10.1111/nicc.13012. PMid:38015002.

24 Hester M, Ingalls NK, Hatzfeld JJ. Perceptions of ICU diary utility and feasibility in a combat ICU. Mil Med. 2016;181(8):895-9. http://doi.org/10.7205/MILMED-D-15-00210. PMid:27483530.

25 Flinterud SI, Moi AL, Gjengedal E, Narvestad Grenager L, Muri AK, Ellingsen S. The creation of meaning: Intensive care nurses’ experiences of conducting nurse-led follow-up on intensive care units. Intensive Crit Care Nurs. 2019;53:30-6. http://doi.org/10.1016/j.iccn.2019.03.009. PMid:31138490.

26 Drumright K, Jones AC, Gervasio R, Hill C, Russell M, Boehm LM. Implementation of an Intensive Care Unit Diary Program at a Veterans Affairs Hospital. J Nurs Care Qual. 2021;36(2):155-61. http://doi.org/10.1097/NCQ.0000000000000510. PMid:32826699.

27 Ednell AK, Siljegren S, Engström Å. The ICU patient diary: a nursing intervention that is complicated in its simplicity. A qualitative study. Intensive Crit Care Nurs. 2017;40:70-6. http://doi.org/10.1016/j.iccn.2016.12.002. PMid:28233651.

28 Rogan J, Zielke M, Drumright K, Boehm LM. Institutional challenges and solutions to evidence-based, patient-centered practice: implementing ICU diaries. Crit Care Nurse. 2020;40(5):47-56. http://doi.org/10.4037/ccn2020111. PMid:33000132.
 


Submetido em:
20/12/2023

Aceito em:
28/05/2024

67ad018ca9539516994dec93 ean Articles

Esc. Anna Nery

Share this page
Page Sections